Doncaster Mum raising awareness of Kawasaki Disease Awareness Day
Saturday 26 January 2019 is International Kawasaki Disease Awareness Day.
Last year, Jo McBride successfully ran a half marathon to fundraise and supply every GP Practice in Doncaster with an awareness pack to raise awareness of this condition. Further details about Kawasaki Disease can be found here.
This is a transcript of my My View column that was published in the Doncaster Star on Monday 26 June, 2017
Some childhood illnesses can be difficult to diagnose as many doctors have never seen some of the rarer ones.
Parents instinctively worry about meningitis but most will probably have never heard of Kawasaki disease and very few doctors will have seen a case, as it affects only eight in every 100,000 children in the UK.
The disease typically strikes children between the ages of six months and five years old. It was originally thought to be a troubling but non-threatening illness until research found it to be much more serious and it has now taken over from rheumatic fever as the most common cause of acquired heart disease in the developed world.
Diagnosing the disease can be a challenge because many of its early features mimic other more common fever related illnesses. These include inflammation and irritation of the lips, mouth and eyes, swollen glands and the hands become red, swollen and tender.
But delays in diagnosing the disease could result in the child having a fatal heart attack.
That’s why I was pleased to learn of a Doncaster mum who is committed to help fund research into, and raise awareness of, this potentially fatal disease after it struck her baby daughter.
Jo McBride, from Sprotbrough, set about researching all about Kawasaki after baby Freya – now two years old – was diagnosed with the disease at two months old following numerous tests and several weeks as an inpatient in various Yorkshire hospitals.
Freya – the youngest of Jo and Gavin’s three daughters – looks a picture of health but her heart was damaged by the disease. She will take aspirin for the rest of her life and receive life-long follow-up care, including having a cardiac catheter angiogram this autumn to enable medics to plan her future care.
Freya’s experience led to Jo becoming somewhat of a Kawasaki disease expert after spending hours reading medical journals and striking up a friendship with San Diego based Professor Jane Burns, a leading international authority on the illness.
The youngster’s illness has been written up as a case study and medics have subsequently learned a lot from her condition.
This has prompted Jo to commit to raising money to fund research that she hopes will lead to a diagnostic test being developed to enable the disease to be identified at an early stage.
She has currently helped raise a staggering £85,500 for Cosmic, the UK charity that is carrying out the research, including £75,000 from a benefactor in Hong Kong.
At Jo’s request we have this month helped raise awareness of the disease amongst Doncaster’s GPs at one of our regular borough-wide training and education sessions. We will also share her information on our website and social media sites.
- Read about Kawasaki Disease: https://www.societi.org.uk/
- Read about Freya’s story: www.facebook.com/freyasstory
- Support Jo’s fund-raising at: uk.virginmoneygiving.com/joannemcbride